VASCULAR BIRTHMARKS

Finding out you or your loved one has been diagnosed with rare condition can be isolating. When The Perkins found out Olivia had Lymphangioma, they did what most families would do - research online.

Touched By Olivia has combined the medical research our fellowship has compiled with the network of families across Australia, and internationally to create a friendly forum to inform and support. 

In our research, we have found a number of websites and support networks that offer families some answers and hope in dark times. Some of these include:

Liam's Land - http://www.liamsland.org/

C.A.L.M - www.staycalm.org

Vascular Birthmarks Foundation - www.vbfaustralia.org/

Lymphatic Malformation Awareness (Facebook group) 

LM Family: This is a private Facebook support group. LM Family has frequent posting from families found across the world dealing with lymphatic malformations on a daily basis. For an invitation to this group, please email rebecca.ho@touchedbyolivia.com.au.